Saturday, October 25, 2008

The Fall Season is over...

Today was "the Cheetah's" final game for the Fall Soccer Season. Although Bailey hasn't been able to play because of her restrictions (3 more weeks) she has been attending the last three games to cheer on her teammates. Here are a few pictures to share..."The Cheetah's"

The girls tackled the coach after the TEAM picture...Fun!!

Giving a team hug...
After the final game, the team handed Bailey a soccer ball that was signed by her entire team...Cool huh!
Here's my FAVORITE picture of the girls being crazy...

Wednesday, October 08, 2008

Bailey's Back to School...

Hi Everyone!! Today was the day we went back to school. I was a nervous wreck...but Bailey was just fine. She told me last night...."Mama, you worry too much." I can't help it, she's my baby! Thanks again for all the friendly support and prayers that you have given. We are truely blessed for having great friends and family.
Another shout out to my ENTIRE FAMILY...I just want to say "I LOVE YOU SO MUCH." Thank you for all the support that you have given us, we wouldn't have made it through this without your support.

Monday, October 06, 2008

Bailey Jeanne...#12

Well, TODAY IS THE DAY!!! We are going home...Yahoo!! The MRI that they had "tenatively" scheduled does not have to happen because her CRP level is coming down. We are just waiting on the paperwork side of things to happen. The continuing care people have to talk to our Home Care Health people in Bay City to arrange a certain time to meet Jim & I at home, so we can be trained on administering Bailey's antibiotics through her pic line. The Dr's. are telling us that whenever we are comfortable about sending Bailey back to school, she can go back. I think we are looking at Wednesday - and she is VERY excited about that. Things are looking up and we are VERY thankful for that! Thanks to all who said a prayer for us...we really appreciate it.

Sunday, October 05, 2008

Bailey Jeanne...#11

Bailey's CRP level is 1.3 ... thanks for lifting our daughter up in prayer...God answers prayer!!

Saturday, October 04, 2008

Bailey Jeanne...#10

Well, today has been a BIG day. Bailey got taken to Pediatric ICU to have her pic line put in about 9:45am, and we got back in the room at about 11:45am. It took longer then I was expecting. The procedure actually didn't take that long, we were only away from Bailey for about 15 minutes. After they put the pic line in, they have to x-ray her chest to make sure that they got it in the right place. Well, they didn't get it perfect on the 1st try, so they had to go in again and replace the line. Bailey was out for all of this, she was just sleeping peaceful. After we got the OK that everything was fine with the pic line, they decided it was ok to take her other IV out of her hand. So now we are hand-free...yahoo!! The wonderful thing about this is, she won't have to get poked every time they need to draw blood anymore. They can just get it from the pic line. Bailey was such a brave girl...she did great!! Ok Everybody...I'm asking everyone I know the pray the same prayer this entire weekend. "Please pray that Bailey's CRP level comes down" (this means that the antibiotics are working on her bone infection). They have a MRI "tentatively" scheduled for Monday. Currently her number is 7, normal is below .8 - if her number stays elavated that probably means that she has an abscess in the hip. So they would do another MRI to check her hip.
I'm believing God is healing my little girl!!
After Bailey got back to her room, she had a nice surprise - VISITORS! She had a wonderful day playing with her cousins and talking with everyone. They spent a couple hours playing in the "Garden Center".
Here is a picture of everyone lovin' on Bailey!

Of course, here is Uncle James being silly...everyone had a good laugh!!
Here's cousin Truett just hangin out with Bailey...she is reading him all her cards she received from her classmates (THANK YOU SO MUCH...it really brightened her day!!)

Getting hugs and kisses from cousin Kierra...
Bailey had a great time showing her cousins all the cards and gifts
that she received from friends, cousins and classmates. She really loved them all!

Friday, October 03, 2008

Bailey Jeanne...#9






Bailey and I decided to come down to the Children's Garden Center room so that we could play on the computer, read books and get out of our room. It is so wonderful that they have a place like this for children. Here are a couple pictures of Bailey & I on our adventure to the Garden Center yesterday...they had a special day with Disney on Ice Characters. Enjoy!!
Well, it sounds like Bailey will have her "pic line" put in tomorrow morning at about 10:00am, so if you think of us around that time - pray that she is not scared and that everything goes smoothly. Personnally on the Mom note - pray for me to hold it together in her presence before she is put under (that is the hardest for me). The Orthopedic doctor seems to think there might be an abscess in the left hip bone (either that or it could be additional blood as a result of her abstraction done on Sunday) so he wants to do another MRI on Monday to decide whether further treatment is needed.

Bailey Jeanne...#8

We are going on 2 nights now of Bailey not having a fever...Thank you God! She still has pain in her hip when she walks, so they give her motrin when needed. The blood culture that they last took shows that it is negative, which means that the staph infection in her blood is going away. The bloodwork still shows that her CRP level is high (normal is below .8 and her level is 7) which means she has a bacterial infection somewhere and we know it's in her bone. Her appetite is definitely coming back - French Toast for breakfast today...whahoo!!
Right now they are waiting to see how the antibiotics will work on the infection. Her Dr. is also waiting to hear from the Orthopedic Dr. to see what he says about the fluid in her hip. Meaning...the two of them will talk to see if he thinks it's necessary to do anything besides the antibiotics (I don't want to say it...the "S" word-surgery) Pray that she won't have to go through that. They have told us that Bailey will have to be on Antibiotics for 4-6 weeks. They are talking about having a "pic line" put in so that we can give her antibiotic treatments at home.
Bailey likes reading the responses on her blog, it really brightens her day.
I'll post more when I know.

Thursday, October 02, 2008

Bailey Jeanne...#7

Ok, we made it down to Beaumont Hospital last night about 11:30pm...whew! Ambulance ride was a first for both Bailey and myself. I'd have to say that you feel EVERY bump in the road and it was a long 2 hour ride. Bailey had the most comfy ride of us all! We are in room 5331 in the South Building. Beaumont(Royal Oak) is a HUGE place and we are being taken care of. Jim and I definitely believe that this is the right place for her to be. The Dr's. @ Beaumont have confirmed that it is for sure a bone infection in her left hip. We just got back (4:30pm) from another ultrasound on the hip to look at the amount of fluid. Now we are just waiting for the Dr. to come back again to tell us what they want to do. Bailey is sleeping at the moment 4:50pm, she is so peaceful. I am so thankful that God has borrowed such a beautiful little girl to me...I am the priveledged one! I know we will make it through this, it's just so frustrating waiting for answers. I'm exhausted and it seems that when the Dr's. talk I don't fully understand what they mean. Thanks to all the supporting comments on our blog, it gives us something more to hold on to. Keep praying...and I'll update when I hear more.

Wednesday, October 01, 2008

Bailey Jeanne...#6

Well, this morning we got the results of bone scan that they did yesterday. The results show that Bailey has an infection growing in her left hip. They did do another MRI on her hip today to see if anything changed from the previous MRI done on Saturday. The results show that she now has 3 spots of possible infection in the hip area. We are being transfered to Beaumont Hospital in Royal Oak (Detroit). U of M doesn't take our insurance, but the Dr.'s assure us that they are just as good. We haven't left yet and they can't give us a actual time it will happen...we just know that it will be this evening. Please pray...I'm trying not to be nervous! Trusting in Him!!